Stories

Inspired to Work Together

by Vickie Buenger September 26, 2019

Erin is my favorite child to read to, the teacher of her three-year-old preschool class told me.  All the children listen, but she always listens like she means it. I knew that feeling myself.  Her face and body connected to each and every story, lighting up in anticipation of excitement, sagging when things got sad, and giggling or guffawing at the funny parts.

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My Music Story

by Jennifer Anand September 25, 2019

I don’t know what your incredible goal/talent/desire was. But I know that you, dear cancer friends, will face the same struggles. The struggles of not being as accomplished as you once were. The grief of mourning your dreams that will never come true.

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Lessons Learned from a Childhood Cancer Survivor

by Mariah Forster Olsen September 23, 2019

As a long-term childhood cancer survivor with numerous late effects, I have had 39 years of experience in the medical field…as a patient.  As many of us know, life consists of doctor appointments, blood work, diagnostic tests, procedures, surgeries, and more. 

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The Helena Effect

by John Kirk September 20, 2019

I don’t use the word “super-hero” lightly when I talk about my daughter, Helena. While they have their origins, they also have an extra something special that sets them apart. My daughter is someone special; she is a cancer survivor, an advocate bent on obtaining the best care for children with cancer in our country and she is a super-hero.

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Not Like the Other Kids

by Danielle A. Cloakey September 16, 2019

I was not like the other kids, my grandma once told me. Her old cat, Cinder, always preferred me to my siblings and cousins, because I was gentle and I wasn’t constantly grabbing at him. The Christmas after I turned two, which was the Christmas after I was diagnosed with stage 4 neuroblastoma, my other […]

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5 Phases of Grieving for the Loss of My Early Twenties

by Urska Kosir September 12, 2019

Hello! Ciao! My name is Urska Kosir and I come from Slovenia, like the US First Lady 🙂 At the age of 22, I received a diagnosis: Hodgkin’s Lymphoma, late stage. Just like Hazel from The Fault in our Stars would say, “I lit up like the Christmas tree,” a well-decorated one. In this essay, […]

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Siblings – You are Our Heroes

by Jennifer Anand September 11, 2019

My oldest brother- tall, dark, and handsome (he’s single ladies, I think), built like a tank, was talking to me in the deepest, openest conversation of both our adult lives. At one point, he recounted the few occasions that he felt at his lowest. He named and described a situation during college, and then said “the other was when…” and kinda shrugged in my direction.

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Struggling to Fit In – The Plight of AYA Cancer Patients

by Sarah Bartosz September 9, 2019

I have stood on the platform of awareness and research to help find and fund cures for childhood cancer. It is a platform my family certainly didn’t willingly ask to stand on

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The Cancer Transition from Age Group to Age Group

by Nick Giallourakis September 5, 2019

I want to make this crystal clear – we will NEVER turn away anyone based on your age.  Those that have the unfortunate luck to be dealing with cancer deserves all the help you want and need – trust me I know from experience.

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The “A” in AYA: Where do Adolescents fit in the Hospital System?

by Angie Giallourakis September 4, 2019

September is Childhood Cancer Awareness Month. September is also Adolescent Cancer Awareness Month. Sometimes language gets in the way of attempting to identify a particular age group. It is easier to use one word to describe a certain age group for the sake of efficiency.

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